Thursday, June 30, 2011

Jaylie - 19 months - Vigabatrin Month 6 (Last month)

Jaylie is doing well, still growing and developing. We are still working with Jaylie on walking, talking and eating. Jaylie is not eating anything by mouth. We are hoping this will change when once we completely taper off the vigabatrin here in a couple of weeks. The plan is to continue on the zonisamide. The neurologist advised tapering off the vigabatrin has a 50/50 chance of seizures returning. A 50/50 percentage is not a good percentage when you are referring to seizure activity... Thus far we have not see any seizure activity pop up, praise God!

Jaylie is continuing her weekly occupational therapist and an oral therapist visits.

Jaylie is motoring around the house (crawling) and pulling her self up on everything we let her.

There is no real major news to report, which is actually a really good thing :). It is nice to have a somewhat 'normal' period of time without any major events happening, praise the Lord!

The eye Doctor wants Jaylie to wear some corrective eye glasses, if she will wear them, to address a slight issue with her right eye but said it would not be a major issue if Jaylie decides she does not want to wear them.

Please continue to keep Jaylie's development, growth and health in your prayers. We are praying God would complete heal Jaylie of all seizure activity.

As always, thank you SO much for your prayer and support!

Nathan, Kristina and Jaylie

Here's a new pic with Jaylie's new frames (the lens' are on order).