Okay, so I'm just a couple of days away from the 6 month mark from my last update... I'm noticing a trend here... I blame it on the hair I am losing here in my 30's :). Anyways, Jaylie is doing well. She is growing and progressing at her own rate which is exactly what the Dr has ordered.
Jaylie is eating more food, though not enough to be nutritionally significant, she is eating more often and more varieties of food. With that said, the feeding therapist is concerned Jaylie has not learned to eat by now. The feeding therapist has advised the longer Jaylie goes without learning to eat, the harder it will be for Jaylie to learn to eat.
Acknowledging the feeding therapists concerns, keeping in mind the Dr's overall goal of focusing on ensuring Jaylie is growing and developing holistically, we are confident Jaylie will be able to overcome her oral aversion. Jaylie's life has proven time and again despite the odds, God will pull her through in His timing. We have not given up hope Jaylie will learn to eat. We fully expect God will continue to be faithful, enabling Jaylie to overcome the oral aversion she currently is struggling with.
Jaylie loves pre-school. Jaylie started her second year of pre-school (first being the tailed end of the 2011-2012 year) in September. Jaylie is learning a lot at school. She is able to recite the alphabet very well, count to 20 in english and spanish (thanks Dora...) and carry on a basic conversation using an improved pronunciation of words, though her vocabulary pronunciation is not 100% correct. Jaylie's oral and cognitive abilities have improved quite significantly over the last 6 months.
Overall things are going really well this year. We've had at least 1 1/2 years of 'normal' life were we aren't running to the Dr every other day with some type of medical emergency, which has been really nice. We are so incredibly thankful for the blessing God has given us, so incredibly thankful for this experience of 'normalcy' with Jaylie. We are currently planning Jaylie's 4th birthday party and the holiday's to follow like normal people do. We like being normal :). Thank you Jesus! :)
We hope and pray this new normal becomes our normal.
We will never forget how this all started and the incredible work and blessing God has done and continues to do in Jaylie's life. We will never forget and will continue to acknowledge we would not be here in this place in life without all of your support, our beloved friends and family!
We hope and pray you all have a very blessed Thanksgiving, Christmas and wonderful New Year!
Nathan, Kristina and Jaylie