Wednesday, August 24, 2011

Jaylie - 21 months

Jaylie is doing well. She is growing and learning.

Jaylie's oral feeding is still progressing, though we still have plenty of work to do.

We have another appointment with the Neurologist next month to discuss the MRI Jaylie had last month to look at her hippocampus growth and white matter effects from the vigabatrin use.

To-date, there has been no seizure activity which is absolutely amazing and a true answer to prayer!!! If you remember back several months ago, the Neurologist advised there was a 50/50 chance of seizures coming back. I know we are only a couple months out from completely coming off vigabatrin, but everyday that is seizure free is a blessing, thank you Jesus!

We've had a good summer thus far. We've done a couple of cool things with Jaylie including her first road trip and jetboat ride. Jaylie had a great time on the road trip, and half of a great time on the jetboat :)

Thank you for all your prayer and support! You are amazing!

Nathan, Kristina & Jaylie

Here are some new pictures of Jaylie. She is getting bigger, pretty amazing when you think about how far we have come eh :)

1 comment:

  1. I haven't been by in a while. It is crazy how big Jaylie is! She is so adorable! I LOVE her hair. I have been following since she was born, you were on the Feb 2010 birth board with me. I am so thankful to God that He has blessed you with this miracle and so many belssings!