Jaylie is doing very well. She is growing, maturing and developing at a steady pace. The Dr's are pleased with her growth and development rate, all things considered.
We are still working with Jaylie on eating. Jaylie has made tiny baby steps but is NOT eating substantial amounts food yet.
Jaylie is still very social. Jaylie is learning to communicate more letting us know she wants to do specifics things like reading books, playing or watching Elmo.
At our last Dr’s visit Jaylie was within the 51 percentile for height, weight and age which is the first time I can remember Jaylie being anywhere close to a ‘normal’ percentile!
We are very pleased and overjoyed with the countless hurdles God has enabled Jaylie to overcome in the last 2 1/2hrs.
If you recall, last June I wrote about us transitioning off of vigabatrin and there being a 50/50 chance of the seizures returning -- we have gone a year without an seizure activity! Praise God!
Jaylie’s journey has been wonderfully miraculous, extraneously challenging and incredibly amazing.
Thank you SO much for your prayer and support. We believe we would not be where we are today without it -- thank you again so very much!
Nathan, Kristina and Jaylie
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