Hello! It's been awhile, my apologies for no updates in literally months...
The good new! Jaylie is doing very well. She is learning growing and progressing at her own rate. Nothing fantablulous to write about which is a good thing all things considered.
Jaylie is still seizure free (praise God!) woo woot!
Jaylie is talking more, running and eating more. Jaylie is still not eating meals or anything substantial nutritionally, but is eating non-the-less and progressing with her eating.
One of the challenges we have with Jaylie is sticking anything in her mouth without her gaging, this includes trying to use a toothbrush. I commented to Kristina the other day on how we need to figure out a way to brush Jaylie's teeth on a consistent bases. Kristina did some research online on her iPhone real quick and came up with the idea of flipping Jaylie completely upside down so that her mouth stayed open so she would gag while brushing her teeth (Kristina got this idea from one of the G-tube forums she is subscribed to). Thinking logically I thought to myself, this could work, lets use gravity to help combat the gag reflex while we attempt to brush Jaylie's teeth :). Lo and behold, Jaylie absolutely LOVED being flipped upside down to brush her teeth! She laughed and giggeled all the while saying 'ahhhhhahhahhhh', it was great fun for all. Thought it takes two people, one doing the holding upside down and the other brushing, Jaylie absolutely LOVES brushing her teeth this way.
As Jaylie is around more children her age her developmental delays become more apparent. Where other kids her age are able to communicate and articulate thoughts, Jaylie is very happy and content to still explore and interact with her world in a more literal sense apposed to a more analytically cognitive sense. Jaylie being our only child actually masks and enables us to not focus on these delays because to us Jaylie is perfect just the way she is (learning and growing at her own place). Our ignorance is bliss mentality is reenforced by the neurologist whom has advised to set the expectations for Jaylie at her level of growth, not other children her own age...
Jaylie's progress overall is moving forward and is leaps and bounds from where we started and where the Dr's thought we would be.
We thank God and for all the answered prayers, wisdom, guidance and favor He has give us this far.
We thank you for all your continued prayer love and support! Prayer love and support really does change lives...
Here is a more recent picture of Jaylie:
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