Jaylie is doing really well on the ACTH so far and really well over all considering. If you recall, I wrote advising our prayer for Jaylie was during this time not only would the medication be affective in treating IS (Infantile Spasms) but that God would provide Jaylie a 110% recovery -- well I can say God answers prayers! Not only is Jaylie doing very well on the ACTH medication thus far (with the spasms decreasing more and more each day) Jaylie is developing over all!
Over the last week Jaylie has decided she wants to sit up now, drink from a bottle and scream all of which she was NOT doing last week!
Here's a bottle holding video (I will spare you from the screaming video) :
http://www.facebook.com/video.php?v=448452784188
Please continue to pray with us as we continue on with this treatment.
Jaylie has been really fussy (a known side effect of ACTH) but is really blossoming.
Our prayer is Jaylie would continue to heal, grow and develop through this time. And that we all would stay healthy, not get sick and not suffer any setbacks if possible.
Thank you for your prayer and support!
We could not do it without you!
Nathan, Kristina & baby Jaylie
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