Today's update is brief which is good. At this point, no news is good news :).
Jaylie is still on the HFOV (High Frequency Oscillating Ventilator) but is slowly being weened off the HFOV. The Dr's have been able to slowly turn down the level of support the HFOV system is providing. The Dr's have advised Jaylie is stable and recovering. The plan is still to slowly remove all the tubes, IV's and ventilator asap but not so fast as to cause Jaylie more harm but not so long as to affect Jaylie's growth, it is a delicate balance. Overall, Jaylie is doing well.
The Dr's have followed up with several chest x-rays without incident. They have also done blood work with the results showing the over all levels of all the stuff they are measuring are trending the right directions (some up and some down).
Now we wait and allow God to do His work in Jaylie and in us.
Each day we travel up to Seattle to be with Jaylie and stay informed with how Jaylie is doing, what the doctor's plan is, what the current goals are and what the long term milestones are. As the plans change, status changes, short term goals and long term goals are achieved we will share them with you.
As always, thank you SO much for your prayer and support!
Nathan, Kristina and Jaylie